Welcome to CSFN

The mission of the Costello Syndrome Family Network (CSFN) is to overcome the challenges of Costello syndrome.

The 2026 Costello Syndrome Family Wall Calendar is ready for pre-order!

Filled with photographs submitted by families and or taken at previous conferences, this full color, glossy wall calendar makes an excellent gift for relatives, friends, caregivers, teachers, medical care providers, and yourself – so do some early Christmas shopping!  Your purchase will not only help bring awareness to Costello syndrome but also support the 2027 biennial conference which provides an awesome learning and social experience for individuals, families and caregivers.

Sales will be open until December 8 or until all the printed calendars are purchased. Shipping will begin around November 21. [Tip: Order now so you don’t miss out as only a limited number of calendars are being printed!]

Click on the link above to see a preview of the calendar and submit your order. Be sure to click the “Free Shipping” button on the order form. Shipping within the United States is free. If more than 2 calendars are to be shipped outside the United States, we will contact you to help with shipping costs.

Your purchase of at least one calendar to show your support for our Costello syndrome families would be greatly appreciated!

About Costello Syndrome Family Network

The Costello Syndrome Family Network (CSFN), founded in 2001, is a nonprofit 501(c)(3) family support organization that works to promote early and accurate diagnosis of Costello syndrome, while raising overall awareness of the syndrome, promoting research into the causes and manifestations of the condition.

CSFN’s mission is to overcome the challenges of Costello syndrome. CSFN helps assure that those with Costello syndrome and their families have the tools and support needed to live lives that are as full and as healthy as possible in order to reach their maximum potential.

Our Gallery

Costello Syndrome Awareness T-shirts!

All Profits benefit Costello Syndrome Family Network (CSFN)

2025 Family Conference in Orlando, Florida, USA!!

The 13th International Costello Syndrome Family Conference will be held at Hyatt Regency Grand Cypress Resort in Orlando, Florida from July 23 – July 27, 2025

Donations & Fundraising

Help us by making a tax-deductible contribution to the Costello Syndrome Family Network. Click the “Donate Now” button below to donate online. If you prefer to mail your contribution, use this form.

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