Welcome to CSFN

The mission of the Costello Syndrome Family Network (CSFN) is to overcome the challenges of Costello syndrome.

About Costello Syndrome Family Network

The Costello Syndrome Family Network (CSFN), founded in 2001, is a nonprofit 501(c)(3) family support organization that works to promote early and accurate diagnosis of Costello syndrome, while raising overall awareness of the syndrome, promoting research into the causes and manifestations of the condition.

CSFN’s mission is to overcome the challenges of Costello syndrome. CSFN helps assure that those with Costello syndrome and their families have the tools and support needed to live lives that are as full and as healthy as possible in order to reach their maximum potential.

Our Gallery

Costello Syndrome Awareness T-shirts!

All Profits benefit Costello Syndrome Family Network (CSFN)

2025 Family Conference in Orlando, Florida, USA!!

The 13th International Costello Syndrome Family Conference will be held at Hyatt Regency Grand Cypress Resort in Orlando, Florida from July 23 – July 27, 2025

Donations & Fundraising

Help us by making a tax-deductible contribution to the Costello Syndrome Family Network. Click the “Donate Now” button below to donate online. If you prefer to mail your contribution, use this form.

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