About Costello Syndrome Family Network
The Costello Syndrome Family Network (CSFN), founded in 2001, is a nonprofit 501(c)(3) family support organization that works to promote early and accurate diagnosis of Costello syndrome, while raising overall awareness of the syndrome and promoting research into the causes and manifestations of the condition.
CSFN’s mission is to overcome the challenges of Costello syndrome. CSFN helps assure that those with Costello syndrome and their families have the tools and support needed to live lives that are as full and as healthy as possible in order to reach their maximum potential.
Mission
To overcome the challenges of Costello syndrome
GOALS:
- Raise awareness of Costello syndrome. Provide information, support and advocacy to families affected by Costello syndrome.
- Support and advocate for best practices and advancements in Costello syndrome treatment and research.
- Provide sustainability of the organization through strong infrastructure, continuity and growth.
Costello Syndrome Family Network
c/o Sandra Taylor
P O Box 1327
Black Mountain, NC 28711 USA