13th International Costello Syndrome Family Conference

 13th International Costello Syndrome Family Conference

Wed July 23 – Sun Jul 27, 2025

Hyatt Regency Grand Cypress Resort

One Grand Cypress Blvd., Orlando, FL 32836 USA

Phone: 1-407-239-1234

Costello Syndrome Family Network organizes a conference every other year to gather families, caregivers, scientists, researchers and doctors under one roof to share, learn and discuss the latest information on Costello syndrome. The conference is a great networking opportunity and a time to meet new friends and catch up with old ones! This conference will be held Wednesday, July 23 through Sunday, July 27, 2025. Plan to arrive by Tuesday, July 22 and begin the conference on Wednesday morning! The conference will end early on Sunday. 

Book your Room – Book by July 1, 2025!

Discounted room rates for the conference are available from Sat, July 19 – Wed, July 30, 2025.
**Cutoff to book rooms at this rate is July 1, 2025.

King with a sofa sleeper – $199/night + tax
Queen/Double – 1 queen, 1 double – $199/night + tax
1-bedroom Executive Suite – $324/night + tax
1-bedroom Junior Suite – $ 324/night + tax
1-bedroom VIP Suite – $399/night + tax
1-Bedroom Bi-Level Suite – $499/night + tax
President’s House – $1,700/night + tax

  • Tax on rooms is currently 12.5%.
  • The daily resort fee of $49/day is waived for the dates listed above.
  • There is an additional fee of $25/day for the fourth person in a room who is 18 years of age or older.
  • Five handicap accessible rooms are included in our room block.
  • Book your room early to have the best chance to get the type of room you want.
  • Complimentary internet in each room.
  • There are a few rollaway bed and cribs available, first come, first served.
  • Self-parking is $12.00 per day (plus tax).
  • Refrigerators in each room.
  • Receiving fee, handling fee and delivery fee waived to send pre-packaged medicine, special food or medical supplies to the hotel.
  • Click HERE to visit the hotel website for more information on the hotel and amenities.

Registration for the conference is not open yet!

Registering for the conference is not yet open.

View Registration Pricing and Details Here

Conference and Travel Scholarships (Must Submit by May 20, 2025 – check forms to confirm dates)
CSFN is offering two different scholarships for the 2025 conference in Orlando. Families may apply for both scholarships but will only be eligible to receive one. Scholarships will be awarded as long as funds are available. Complete information including qualifications and directions on how to submit the applications are included with each form. Applications and their contents will remain confidential.

Conference Scholarship Details and Forms

Travel Scholarship Details and Forms

CS Ambassador Award and CS Sibling Champion Award (Must be submitted by May 1, 2025 – check forms to confirm dates)
CSFN would like to recognize those who raise awareness and those who support individuals with Costello syndrome. You are the only one who can make this happen by sending in nominations! Winners will be announced at the conference. See the Nomination Form for more details.

  • The Costello Syndrome Ambassador Award Nominees should be individuals with Costello syndrome who raise awareness about Costello syndrome and show everyone the possibilities.
  • The Sibling Champion Award Nominees should be siblings of individuals with Costello syndrome who support their sibling and show the world how wonderful their brother or sister with Costello syndrome is.

CS Ambassador Award and CS Sibling Champion Award Details and Forms

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