General Resources

This page has links to resources and well as links to personal blogs of families dealing with a Costello Syndrome diagnosis.

Costello Syndrome Facebook Support Group      A closed group for families only

Email-based Discussion Forum      Join the e-mail listserve to learn, share, and get parent-to-parent support!

Costello Syndrome Family Network Facebook Page      Public page for everyone

Costello Kids      International Costello Syndrome Support Group (ICSSG) page

Sign up for news and updates     Sign up to receive our newsletters and other updates

RASopathiesNet     Nonprofit whose goal is to grow a community of practice around RASopathies research.  The RASopathies are a group of related genetic syndrome which includes cardio-facio-cutaneous (CFC), Costello (CS), LEOPARD/NSML, Neurofibromatosis type 1 (NF1), and Noonan (NS). 

mejo     A better way to simplify, organize and share your kid’s most important medical & care information all in one web app.
mejo

E-MAIL US

info@costellosyndromeusa.org

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